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that sucks.
Well Emo has been having these weird feelings of vertigo on and off for about 6 months. Twice now he's had it where it lasted all day and even lying down flat on the floor with his eyes closed he was still so dizzy he was throwing up.
So dizzy he couldn't stand - a coworker had to carry him from the car up to our apartment.
Also he went for 2 months this summer with a constant head pressure that just about made hearing out of his left ear impossible. He thought it was allergies. Heck we all thought it was allergies. Benedryl and all those other OTC's didn't do anythign but Emo didn't want to go to the doctor just for some meds that would "knock him on his ass".
After this last episode had happened at work he went to the doctor. they gave him soem anti-nausea pills and a referal to an ear specialist.
This friday we got the word fro mthe ear specialist.
Hubby has Menier's disease and is slowly but surely losing his hearing. there is a high probability he will be completely deaf i nthe next 10- 20 years.
dear lord this is not what I was expecting. I thought they were goign to say he had built up fluid, or impacted ear wax. Basically somethign a bandaid would fix. no go. dang it.
After extensive tests they've appreciated a 50% hearing loss in his left ear allready and a lesser loss (10-15%) in his right.
Basically Meniere's is a combo of bad headaches, tinitus, excessive fluid in the ears, and bouts of vertigo that all lead to inevitable hearing loss/deafness. So far they want to treat him with a low low low soduim diet, and a combo of medications. They key is to stop or slow down the instances of vertigo since after each episode there is significant hearing loss.
this just sucks. I mean.. it;s not like he was diagnosed with cancer or anything... so I feel bad that I'm so mad. I am just angry. At what I don;t know. But I am mad. Mostly I guess 'casue there is nothing we can do about it. Just one day I will turn to my husband to tell him somethign and he won;t be able to hear me.
It makes me so sad.
thats all i guess.... I just had to get it out.
thanks.
that sucks.
i believe, could be wrong, thats the same thing that happened to Rush Limbaugh.
Horrible disease.
Prayers to your family obiwan. Your husband is a good hardworking man who deserves better.
Im sorry to hear that, very sad. Our prayers are with your husband and family.
Hang in there.
Wow, I'm sorry to hear about this.
Hope everything works out
this just sucks. I mean.. it;s not like he was diagnosed with cancer or anything... so I feel bad that I'm so mad. I am just angry. At what I don;t know. But I am mad. Mostly I guess 'casue there is nothing we can do about it. Just one day I will turn to my husband to tell him somethign and he won;t be able to hear me.
It makes me so sad.
thats all i guess.... I just had to get it out.
thanks.
You have every right to feel mad, and upset, and sad. It's normal. I am so very sorry to hear about this. My prayers are with you and Emo and your two sweet little girls.
Maybe in 10-20 years, they'll have found something to help with Menier's disease. I know it sounds silly, but you should always keep hope. When things like this happen, it makes you appreciate the time you have with the people you love so much more.
Sorry Obiwan. A lot of advancements in medicine can happen very quickly. Hopefully they can slow the progression of the disease and find a cure for your husband before he loses his hearing all together.
We'll pray for him.
Is he goin tohave an operation to clear it up like that female rapper who just announce she had hearin loss, it was in the headlines this month, i think its lilkim or fox brown...
Sorry to hear that, Obi. Hang in there.
Foxy Brown, but I don't know if its the same thing.
Sorry to hear that Obi. I hope everything works out.
Thanks everyone.
as far as surgery... we are still just learnign about this. (he was litterly diagnosed 4 days ago). But I've read on the meniere's support forums that there are 3 types of surgery that may help, may not help or may do more damage. It seems the surgeries are for different aspects of the disease (ie. just the fluid build up, just the headaches etc).
Another treatment I've seen mentioned alot is a machine that you use in combo with ear tubes.... you get the ear tubes put in by the doc, then attache the machine to them at least 2 times a day and it vibrates or sucks the fliud out or something. Anyway you still have to take the meds.
His doc wants him on meds for 2 months and then go back for more testing. I guess we'll discus these other options with her then.
meanwhile I'm searching amazon for a cookbook on low sodium cooking.
thanks everyone ofr your nice thoughts and prayers. i really appreciate it.
Best wishes. Reminds me of one of my old co-workers at Brooks. A Tech Sgt that was giving the wrong medication by the military and went half deaf on a C130 flight.
The bright side to this is that medicine is changing at an incredible pace today. When something earns you a "we can't do that" today, it can very well earn you a "thats easy to fix" 5-10 years from now. So the situation is far from hopeless.
I don't know what I'd do if I lost my hearing, but I know I'd be pissed the off at something. The way you feel is understandabe.
Hope you guys keep your collective chin up and I hope it works out as can be expected.
Hang in there, in the end you will find things will work themselves out and you'll be a stronger unit because of it. Wishing you and your family the best.
Sorry to hear it...at least your husband has you with him to go through this. As the others have said, hopefully medicine will advance to the point where this is easily defeated soon.
Hang in there.. You would be surprised at how things can work out.
Sorry to hear about it. As you said, it could have been something worse like an acoustic neuroma, but that's probably not much condolence.
Dang, sorry to hear that Obi. i'll be praying for him.
^ she is right, just keep hope
I'm sorry Obiwan. You are in my thoughts and prayers.
...be strong.
I'm very sorry to hear that...
I'm so sorry to hear that Obiwan. My 22 year old brother has unexplained hearing loss, about 75% in one ear and about 66% in the other. He has excellent hearing aids that wouldn't have been able to help him 15 years ago. They don't know what has caused the damage, but have been able to slow it. And he just spent a year in Iraq without his hearing aids and made it through just fine with lip reading.
It's not entirely the same thing, I know. But advances are happening all the time and it's something you will all learn to live it. It'll even be a gradual transition. And given how much hearing aids have done for my brother, and how his audiologist is hopeful about further advances in the field . . . there is so much that can happen and he's been diagnosed now and can start taking good measures to counter the disease and slow it's progression that there is room for hope.
It's okay to be angry - at fate, at the doctors, at him and yourself. It's okay to be worried about the future and sad. Just try to leave some room for hope.
Sorry to hear that.
You and your family will be in my prayers!
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